I had a long day at MD Anderson yesterday. We had to be there at 8am for a blood draw, (stopped in to see Deana while she was in pre-op, she got her new boobs yesterday!) followed by a Dr appt with my oncologist, followed by a small 4 hour period of nothing, then a nutritionist followed by chemo. Well, we ran some errands during that 4 hr break, but still go back around noon, so we went ahead and checked in for chemo. They started me at about 12:30 and the whole process with all 7 bags was just over 3 hours.
They started off with my 3 bags of Pre-meds. Adavan for anxiety, which makes you tired. Dexamethasone steroids for reactions and nausea, and makes you hyper, and Zofran for nausea and vomiting. Normally on the way home from Taxol, I was chatty Cathy but this Adavan knocked me out and I took a nap on the way home this time. Then after a quick flush, they started the heavy duty stuff. Adriomycin (the red devil as it's usually called) and Cytoxan were first. They drip by gravity, so there is no time limit on those. Just depends on how fast your port allows it to go through. The last one is the 5-FU, the big bag. It is infused over a 1 hr period through the machine.
So, while it was dripping, the nutritionist came to visit, Chris watched TV, Moni visited, and I worked on designs. It wasn't bad and it felt like water going through me. As I mentioned, I crashed on the way home because I was so tired. We stopped for a quick bite to eat at our staple "after-chemo" place....Which-Wich. It's an awesome sandwich shop and since it's lighter fare, it sets well in my tummy.
Chris does well taking care of me. He gets me home, gives me whichever prescriptions I need to take and puts me to bed. Last night we got home earlier than expected, so I got to see the kids for a minute before they headed to bed. I was in bed shortly after.
It took me a while to fall asleep, and I slept pretty good, except a 1 hour block that I was awake during the middle of the night. I had to get a snack and take another anti-nausea pill. I slept in this morning and had my friend came get the kids for school. Since my mom was there overnight, she was able to get them all ready for school and get them out the door. She then stayed with Grayson until I woke up. We all had lunch together today before she headed back to her house with Grayson. She is keeping him until Sunday so I only have 2 to deal with so I can rest. She's such a sweet mommy!
Yesterday, Grayson got sent home from school with a fever. I was so thankful that everyone managed to take care of him without having to call me. Mary picked him up from school, called my mom to meet her at the house and brought him here, found the key I had left, and got him inside and took his temperature. Mom told us about it as we called during chemo, but thank goodness they were able to take care of him and found everything without having to call me. I would have worried myself sick over him. He woke up fine this morning and it was probably just a reaction to his flu shot from the day before. (He calls it a blue shot, so we don't get the blues, I guess)
The hardest thing throughout this whole cancer process so far has been the guilt. Mostly with the kids. I "feel" fine, so I tend to not ask for help. I am running myself ragged and not resting like I should be, so my Dr scolded me, as did my friend Moni, who had some helpful tips. So, I've arranged a "Personal Assistant" who will be making calls on my behalf to friends and family who have offered to help, and will be having them help, without me asking. I tried to apply for the "Cleaning for a reason" cleaning services. They clean once a month for free, for women in cancer treatment, but go figure...no one in my area. So, now my cobwebs in the window and dust on the shelves will just stay....hahaha. We have managed so far to get the basics done, but we don't ever have time to get to the more time consuming stuff. We pick up, vacuum, clean the kitchen, and do laundry. That's about it. Bathrooms get done about once every week if we're lucky.
This regimen I am on is going to make me more tired, which means I don't have a choice but to rest, or I will fall asleep where ever I am....even if it's driving. SOOOOO, I have to rest, and swallow my pride and ask for help....or have Eva do it for me. Chris has too much on his plate and needs a break.
I'm just thankful I have friends in my life who are WILLING to help, and WANT to help. It's unfair having cancer with little ones so young. Arranging the childcare has been the toughest thing, and then making sure whoever is picking up/dropping off has car seats since all 3 kids are still in car seats. I'm gonna have one heck of a garage sale in a few years.....we own 9 car seats! 3 in my suburban, 3 in Chris' truck and 3 floaters.
So, to all you wonderful people who have asked what you can do, send me an email and I'll put you in touch with Eva who can tell you what you can do, based on your "likes" and "dislikes". Let's face it....only people who LIKE doing toilets are going to want to volunteer to clean my bathrooms.....I have a newly potty trained 2 yr old who won't point his pecker down because he refuses to touch it....and he pees straight out in front..... yeah... that's fun!
Me playing around with the "red devil" cocktail, pretending I was a vampire and it was blood. I guess I was in a Halloween mood.....