Yesterday, I had a visit with my oncologist and FAC chemo #2. All in all, things went well. They switched my anti-nausea meds to Emend because my insurance company is silly about paying for Zofran. They only give me 21 pills for 25 days, and my chemo is 21 days apart, so they wouldn't fill it. So, he sent in for emend, which is WAY more expensive. HAHAHA. I love the way he works. We had a good laugh about that.
I asked about my hair falling out. He had mentioned that it would start falling out (what was left after Taxol) on day 10 and be completely out by day 17. Well, yesterday (day 22) I still have all my peach fuzz left. He was stumped. He doesn't see that often apparently. I even shaved it with a razor on October 29 for a costume party where Chris and I went as Mr. and Mrs. Clean and it grew back. I wear a wig too much, and I wanted to feel free and there aren't a whole lot of costumes for bald women. He thinks I have super follicle hair cells that might not be reacting to the chemo like normal people. So, I may not lose my hair completely. Time will tell. The tumor is still shrinking, I haven't had another scan yet, but I can physically feel it shrinking.
When he asked about my fatigue, I mentioned that I sleep about 9-10 hours at night, which is about double my normal amount, and I also take 2-3 hr naps most days when the kids let me. He said there is a fatigue clinic at MDA and is setting me up an appointment to see them. They can give me ADHD drugs like Adderol and/or Ritalen (sp). They can give me a little boost and make me feel not so tired.
They are also setting up my appointment with the plastics department so that I can meet with them before my Mastectomy and everyone will be on the same page before surgery. I've talked to a few people who have had my type of surgery, or close to it, and they have set my mind at ease a little bit. I've learned that the more stomach fat you have, the more likely they will only pull from there, which means I get my tummy tuck AND new perky boobs out of this. So, I'm busy plumping up in the meantime. :-) I'll use that as my excuse. hehehe
You can really see my face plumping up in these pictures. It's normal with chemotherapy, but I've just noticed it recently as my glasses are getting tighter. I had to go get them adjusted today.
They have puzzles everywhere at MDA, but only on the tables in the waiting rooms, and I got tired of never completing a puzzle, so I took along my iPad (thank you Shawn!) and downloaded an app where you can put together a puzzle. So, I took a picture of me working on a puzzle during chemo.
As for side effects, I'm feeling OK. Nausea is under control, I'm just exhausted. I feel like it takes every ounce of energy to get out of bed in the morning to take the kids to school. I'm ready to go back to bed as soon as I drop them off. Unfortunately, I have a VERY active 2 yr old to deal with. He likes to climb all over me as though I'm a human jungle gym. So, unless someone takes him for the day, or for a few hours, I don't get in much of a nap.
Cleaning doesn't get done much, though I do try to get some stuff done here and there as I get bouts of energy. I eat sandwiches and soup, things that are easy to make and don't require a lot of time or energy. I'm thankful that I only have 2 more treatments left of chemo, and then I'm done with this part, which I think is the worst part. I'm also thankful for the cleaning fairies and the meal fairies and anyone who has taken Grayson for a while so I can rest. Without those people, my journey would be WAY more hectic and stressful. I am also very lucky to have such an AWESOME husband who picks up the slack on my chores, and takes over the kids at 5pm and sends me to my room to rest. Without all these people, I truly would be a mess! Thank you to EVERYONE who has helped out giving rides, cooking, cleaning, and childcare. You guys all ROCK!! I love my Team Tiffany!!!
You've completed more than you have left! What a great feeling for you! Proud of you! ~Moni
ReplyDeleteYou are doing awesome! I love you!
ReplyDeleteI'm glad you're more at ease about your surgery now. I hope they're able to help your fatigue, too!
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